Get a chance to hear experts from the achondroplasia community share their perspectives and connect with local families who understand your experience. We hope to see you at a future event!
Join the Inside Story to stay notified of upcoming events or to get in touch with an experienced BioMarin representative.
May 29
In-person
Join us for a free, family-friendly event and meet other families from the local achondroplasia community. Enjoy a live reading of Rising Love, a book written for children with achondroplasia.
Friday, May 29 at 6:00 PM CT
23235 Kingsplace Dr Katy, TX 77494
Jun 4
Pediatrician in Clinical Genetics
Director Midwest Regional Bone Dysplasia Clinic, University of Wisconsin
Aug 21-23
In-person
Brought to you by: Little Legs Big Heart & GutMonkey
An empowering weekend celebrating resilience, community, and connection for individuals with Skeletal Dysplasia and their families and joy takes center stage.
Sponsored by an independent grant from BioMarin.
Friday, August 21 – Sunday, August 23
Winder, Georgia
Aug 28-30
In-person
Brought to you by: Little Legs Big Heart & GutMonkey
An empowering weekend celebrating resilience, community, and connection for individuals with Skeletal Dysplasia and their families and joy takes center stage.
Sponsored by an independent grant from BioMarin.
Friday, August 28 – Sunday, August 30
Casco, Maine
Sep 11-13
In-person
Brought to you by: Little Legs Big Heart & GutMonkey
An empowering weekend celebrating resilience, community, and connection for individuals with Skeletal Dysplasia and their families and joy takes center stage.
Sponsored by an independent grant from BioMarin.
Friday, September 11 – Sunday, September 13
Boulder Creek, CA
Oct 2-4
In-person
Brought to you by: Little Legs Big Heart & GutMonkey
An empowering weekend celebrating resilience, community, and connection for individuals with Skeletal Dysplasia and their families and joy takes center stage.
Sponsored by an independent grant from BioMarin.
Friday, October 2 – Sunday, October 4
Burton, Texas
Oct 16-18
In-person
Brought to you by: Little Legs Big Heart & GutMonkey
An empowering weekend celebrating resilience, community, and connection for individuals with Skeletal Dysplasia and their families and joy takes center stage.
Sponsored by an independent grant from BioMarin.
Friday, October 16 – Sunday, October 18
Park City, Utah
Discover a treatment option for infants and children with achondroplasia.
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