This website is intended for residents of the U.S. interested in achondroplasia
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Attend an achondroplasia event

Get a chance to hear experts from the achondroplasia community share their perspectives and connect with local families who understand your experience. We hope to see you at a future event!

Join the Inside Story to stay notified of upcoming events or to get in touch with an
experienced BioMarin representative.

 

May 16

In-person

Rising Love in Nashville

Join us for a free, family-friendly event and meet other families from the local achondroplasia community. Enjoy a live reading of Rising Love, a book written for children with achondroplasia.

Saturday, May 16 at 11:00 AM CT

3821 Green Hills Village Drive Nashville, TN 37215

Register Now

May 29

In-person

Rising Love in Katy

Join us for a free, family-friendly event and meet other families from the local achondroplasia community. Enjoy a live reading of Rising Love, a book written for children with achondroplasia.

Friday, May 29 at 6:00 PM CT

23235 Kingsplace Dr Katy, TX 77494

Register Now

Explore a treatment option

Discover a treatment option for infants and children with achondroplasia.

Learn more

Join the inside story

Gain access to information about achondroplasia, including educational resources and upcoming events in your area. All sent directly to your inbox.

Stay connected

References:

  • Hoover-Fong J, Cheung MS, Fano V, et al. Lifetime impact of achondroplasia: current evidence and perspectives on the natural history. Bone. 2021;146:115872.
  • Horton WA, Hall JG, JT. Achondroplasia. Lancet. 2007;370(9582):162-172.
  • Witt S, Rohenkohl A, Bullinger M, et al. Understanding, assessing and improving health-related quality of life of young people with achondroplasia – a collaboration between a patient organization and academic medicine. Pediatr Endocrinol Rev. 2017;15(suppl 1):109-118.