This website is intended for residents of the U.S. interested in achondroplasia
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Attend an achondroplasia event

Get a chance to hear experts from the achondroplasia community share their perspectives and connect with local families who understand your experience. We hope to see you at a future event!

Join the Inside Story to stay notified of upcoming events or to get in touch with an
experienced BioMarin representative.

 

Jun 4

Webinar

Understanding the ACH Journey

Thursday, June 4 at 5:00 PM CT

Register Now

Featuring

  • Janet Legare, MD

    Pediatrician in Clinical Genetics
    Director Midwest Regional Bone Dysplasia Clinic, University of Wisconsin

Aug 21-23

In-person

Camp Ellellbee — Winder

Brought to you by: Little Legs Big Heart & GutMonkey

An empowering weekend celebrating resilience, community, and connection for individuals with Skeletal Dysplasia and their families and joy takes center stage.
Sponsored by an independent grant from BioMarin.

Friday, August 21 – Sunday, August 23

Winder, Georgia

Pre Register

Aug 28-30

In-person

Camp Ellellbee — Casco

Brought to you by: Little Legs Big Heart & GutMonkey

An empowering weekend celebrating resilience, community, and connection for individuals with Skeletal Dysplasia and their families and joy takes center stage.
Sponsored by an independent grant from BioMarin.

Friday, August 28 – Sunday, August 30

Casco, Maine

Pre Register

Sep 11-13

In-person

Camp Ellellbee — Boulder Creek

Brought to you by: Little Legs Big Heart & GutMonkey

An empowering weekend celebrating resilience, community, and connection for individuals with Skeletal Dysplasia and their families and joy takes center stage.
Sponsored by an independent grant from BioMarin.

Friday, September 11 – Sunday, September 13

Boulder Creek, CA

Pre Register

Oct 2-4

In-person

Camp Ellellbee — Burton

Brought to you by: Little Legs Big Heart & GutMonkey

An empowering weekend celebrating resilience, community, and connection for individuals with Skeletal Dysplasia and their families and joy takes center stage.
Sponsored by an independent grant from BioMarin.

Friday, October 2 – Sunday, October 4

Burton, Texas

Pre Register

Oct 16-18

In-person

Camp Ellellbee — Park City

Brought to you by: Little Legs Big Heart & GutMonkey

An empowering weekend celebrating resilience, community, and connection for individuals with Skeletal Dysplasia and their families and joy takes center stage.
Sponsored by an independent grant from BioMarin.

Friday, October 16 – Sunday, October 18

Park City, Utah

Pre Register

Explore a treatment option

Discover a treatment option for infants and children with achondroplasia.

Learn more

Join the inside story

Gain access to information about achondroplasia, including educational resources and upcoming events in your area. All sent directly to your inbox.

Stay connected

References:

  • Hoover-Fong J, Cheung MS, Fano V, et al. Lifetime impact of achondroplasia: current evidence and perspectives on the natural history. Bone. 2021;146:115872.
  • Horton WA, Hall JG, JT. Achondroplasia. Lancet. 2007;370(9582):162-172.
  • Witt S, Rohenkohl A, Bullinger M, et al. Understanding, assessing and improving health-related quality of life of young people with achondroplasia – a collaboration between a patient organization and academic medicine. Pediatr Endocrinol Rev. 2017;15(suppl 1):109-118.