Join the inside story
Gain access to information about achondroplasia, including the latest research advancements and upcoming events in your area. All sent directly to your inbox.
Your experience with achondroplasia can feel overwhelming, but you’re not alone. A community of resilient individuals, dedicated caregivers, and experienced medical professionals is here to offer guidance, support, and expertise—ensuring you and your child have resources to thrive every step of the way.
Achondroplasia is just a part of who they are and it is not their life. Her name is Sarah, not achondroplasia…achondroplasia just happens to be her condition.
Jennifer, Caregiver to Sarah, 5 years old*
Dive deeper into achondroplasia to learn about its cause and how inhibited bone growth can affect development.
Rising Love events bring children with achondroplasia and their families together to share experiences, offer support, and make lasting friendships. Meet members of your local achondroplasia community at a family-friendly gathering near you!
Raegan has a larger-than-life personality and loves to laugh. Her mother, Raechel, is a planner who always has an eye on the big picture. See how their community helped them find belonging and understanding.
Gain access to information about achondroplasia, including the latest research advancements and upcoming events in your area. All sent directly to your inbox.
*Names have been anonymized.