This website is intended for residents of the U.S. interested in achondroplasia
Welcome to

The Inside Story

Your experience with achondroplasia can feel overwhelming, but you’re not alone. A community of resilient individuals, dedicated caregivers, and experienced medical professionals is here to offer guidance, support, and expertise—ensuring you and your child have resources to thrive every step of the way.

 

Achondroplasia is just a part of who they are and it is not their life. Her name is Sarah, not achondroplasia…achondroplasia just happens to be her condition.

Jennifer, Caregiver to Sarah, 5 years old*

Understanding achondroplasia

Dive deeper into achondroplasia to learn about its cause and how inhibited bone growth can affect development.

Learn more

Meet others in the community

Rising Love events bring children with achondroplasia and their families together to share experiences, offer support, and make lasting friendships. Meet members of your local achondroplasia community at a family-friendly gathering near you!

Join an event

Get to know Raegan and her mom, Raechel

Raegan has a larger-than-life personality and loves to laugh. Her mother, Raechel, is a planner who always has an eye on the big picture. See how their community helped them find belonging and understanding.

Watch the video

Join the inside story

Gain access to information about achondroplasia, including the latest research advancements and upcoming events in your area. All sent directly to your inbox.

*Names have been anonymized.

References:

  1. Horton WA, Hall JG, Hecht JT. Achondroplasia. Lancet. 2007;370(9582):162-172.
  2. Hoover-Fong J, Cheung MS, Fano V, et al. Lifetime impact of achondroplasia: current evidence and perspectives on the natural history. Bone. 2021;146:115872.
  3. Constantinides C, Landis SH, Jarrett J, et al. Quality of life, physical functioning, and psychosocial function among patients with achondroplasia: a targeted literature review. Disabil Rehabil. 2022;44(21):6166-6178.