This website is intended for residents of the U.S. interested in achondroplasia

A growing collection of helpful resources

Discover resources to connect with the community, learn from clinical experts, support care decisions, and more.

The most important thing with caring for my daughter is giving her a set of tools.

Stephanie, mother of Katie, 9 years old*

Downloadable resources

What is achondroplasia?

This overview takes a look at achondroplasia, including its genetic cause and how it inhibits bone growth.

Download PDF

Achondroplasia growth charts

These growth curves are an important tool to track, predict, and evaluate growth.

Download PDF

Medical guidelines for achondroplasia

A summary of expert guidelines that outline how to monitor for complications associated with achondroplasia and help discuss them with your care team.

Download PDF

Rising Love children’s book

The inspiration for Rising Love events—this fun and educational book follows 4 unique kids in families where achondroplasia is just a part of life.

Download PDF

Learn from the community

Meet local members of the achondroplasia community or hear from experienced healthcare professionals in person or virtually.

Join an event

Caring for yourself

Self care is essential, especially when navigating the highs and lows of a new diagnosis. See the simple steps you can take to make sure your emotional health is a priority.

Explore tips

Join the inside story

Gain access to information about achondroplasia, including educational resources and upcoming events in your area. All sent directly to your inbox.

Stay connected

References:

  • Adedeji A, Witt S, Innig F, et al. Coping and quality of life of parents of children with achondroplasia-a narrative review. Front Med (Lausanne). 2025;12:1500389.
  • Foreman PK, van Kessel F, van Hoorn R, et al. Birth prevalence of achondroplasia: a systematic literature review and meta-analysis. Am J Med Genet A. 2020;182(10):2297-2316.
  • Hoover-Fong J, Scott CI, Jones MC; Committee on Genetics. Health supervision for people with achondroplasia. Pediatrics. 2020;145(6):e20201010.
  • Horton WA, Hall JG, JT. Achondroplasia. Lancet. 2007;370(9582):162-172.