This website is intended for residents of the U.S. interested in achondroplasia

Attend an achondroplasia event

Get a chance to hear experts from the achondroplasia community share their perspectives and connect with local families who understand your experience. We hope to see you at a future event!

Join the Inside Story to stay notified of upcoming events or to get in touch with an
experienced BioMarin representative.

 

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Nov 14-16

In-person

Camp Ellellbee — Atlanta

Brought to you by: Little Legs Big Heart & GutMonkey

An empowering weekend celebrating resilience, community, and connection for individuals with Skeletal Dysplasia and their families and joy takes center stage.
Sponsored by an independent grant from BioMarin.

Friday, November 14 – Sunday, November 16

Atlanta, GA

Register now

Nov 15

In-person

Rising Love – Tomball

Join us for a free, family-friendly event and meet other families from the local achondroplasia community.

Enjoy a live reading of Rising Love, a book written for children with achondroplasia.

Saturday, November 15 at 3:00 PM CT

Tomball, TX

Register Now

Nov 16

Webinar

THE INSIDE STORY ON ACHONDROPLASIA

Speaker: Pedro A. Sanchez, MD, FAAP, FACMG

Join us to hear from Pedro A. Sanchez, MD, FAAP, FACMG and uncover a deeper understanding of achondroplasia, including how inhibited bone growth throughout the body can have a lasting impact on development and overall health.

Sunday, November 16 at 8:00 PM ET

Register Now

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