This website is intended for residents of the U.S. interested in achondroplasia

Attend an achondroplasia event

Get a chance to hear experts from the achondroplasia community share their perspectives and connect with local families who understand your experience. We hope to see you at a future event!

Join the Inside Story to stay notified of upcoming events or to get in touch with an
experienced BioMarin representative.

 

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Oct 3-5

In-person

Camp Ellellbee — San Diego

Brought to you by: Little Legs Big Heart & GutMonkey

An empowering weekend celebrating resilience, community, and connection for individuals with Skeletal Dysplasia and their families and joy takes center stage.
Sponsored by an independent grant from BioMarin.

Friday, October 3 – Sunday, October 5

San Diego, CA

Register now

Oct 4

In-person

Rising Love – North Attleborough

Join us for a free, family-friendly event and meet other families from the local achondroplasia community.

Enjoy a live reading of Rising Love, a book written for children with achondroplasia.

Saturday, October 4 at 12:00 PM ET

North Attleborough, MA

Register Now

Oct 4

In-person

Rising Love – Baton Rouge

Join us for a free, family-friendly event and meet other families from the local achondroplasia community.

Enjoy a live reading of Rising Love, a book written for children with achondroplasia.

Saturday, October 4 at 3:00 PM CT

Baton Rouge, LA

Register Now

Oct 17-19

In-person

Camp Ellellbee — Philadelphia

Brought to you by: Little Legs Big Heart & GutMonkey

An empowering weekend celebrating resilience, community, and connection for individuals with Skeletal Dysplasia and their families and joy takes center stage.
Sponsored by an independent grant from BioMarin

Friday, October 17 – Sunday, October 19

Philadelphia, PA

Register now

Oct 23-26

In-person

Little Legs Big Heart Skeletal Dysplasia Conference

Brought to you by: Little Legs Big Heart

This is more than a conference. It’s a celebration, a support system, a safe space, and a serious game-changer for the skeletal dysplasia community.

Thursday, October 23 – Sunday, October 26

West Palm Beach, FL

Register now

Nov 14-16

In-person

Camp Ellellbee — Atlanta

Brought to you by: Little Legs Big Heart & GutMonkey

An empowering weekend celebrating resilience, community, and connection for individuals with Skeletal Dysplasia and their families and joy takes center stage.
Sponsored by an independent grant from BioMarin.

Friday, November 14 – Sunday, November 16

Atlanta, GA

Register now

Nov 15

In-person

Rising Love – Tomball

Join us for a free, family-friendly event and meet other families from the local achondroplasia community.

Enjoy a live reading of Rising Love, a book written for children with achondroplasia.

Saturday, November 15 at 3:00 PM CT

Tomball, TX

Register Now

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