Get a chance to hear experts from the achondroplasia community share their perspectives and connect with local families who understand your experience. We hope to see you at a future event!
Join the Inside Story to stay notified of upcoming events or to get in touch with an experienced BioMarin representative.
Sep 7
Webinar
Speaker: Cathleen Raggio, MD
You’re invited to learn more about how to best support your child throughout their achondroplasia journey.
Join us to hear from Cathleen Raggio, MD and uncover a deeper understanding of achondroplasia, including how inhibited bone growth throughout the body can have a lasting impact on development and overall health.
Sunday, September 7 at 8:00 PM ET
Sep 19-21
In-person
Brought to you by: Little Legs Big Heart & GutMonkey
An empowering weekend celebrating resilience, community, and connection for individuals with Skeletal Dysplasia and their families and joy takes center stage.
Sponsored by an independent grant from BioMarin.
Friday, September 19 – Sunday, September 21
New Hampshire
Sep 26-28
In-person
Brought to you by: Little Legs Big Heart & GutMonkey
An empowering weekend celebrating resilience, community, and connection for individuals with Skeletal Dysplasia and their families and joy takes center stage.
Sponsored by an independent grant from BioMarin.
Friday, September 26 – Sunday, September 28
Dallas, TX
Oct 3-5
In-person
Brought to you by: Little Legs Big Heart & GutMonkey
An empowering weekend celebrating resilience, community, and connection for individuals with Skeletal Dysplasia and their families and joy takes center stage.
Sponsored by an independent grant from BioMarin.
Friday, October 3 – Sunday, October 5
San Diego, CA
Oct 17-19
In-person
Brought to you by: Little Legs Big Heart & GutMonkey
An empowering weekend celebrating resilience, community, and connection for individuals with Skeletal Dysplasia and their families and joy takes center stage.
Sponsored by an independent grant from BioMarin
Friday, October 17 – Sunday, October 19
Philadelphia, PA
Oct 23-26
In-person
Brought to you by: Little Legs Big Heart
This is more than a conference. It’s a celebration, a support system, a safe space, and a serious game-changer for the skeletal dysplasia community.
Thursday, October 23 – Sunday, October 26
West Palm Beach, FL
Nov 14-16
In-person
Brought to you by: Little Legs Big Heart & GutMonkey
An empowering weekend celebrating resilience, community, and connection for individuals with Skeletal Dysplasia and their families and joy takes center stage.
Sponsored by an independent grant from BioMarin.
Friday, November 14 – Sunday, November 16
Atlanta, GA
Gain access to information about achondroplasia, including the latest research advancements and upcoming events in your area. All sent directly to your inbox.