{"id":11,"date":"2023-07-05T17:19:08","date_gmt":"2023-07-05T17:19:08","guid":{"rendered":"https:\/\/achdsepatient-dev-001.azurewebsites.net\/en-us\/?page_id=11"},"modified":"2026-04-30T14:29:17","modified_gmt":"2026-04-30T14:29:17","slug":"home","status":"publish","type":"page","link":"https:\/\/achondroplasia.biomarin.com\/es-us\/","title":{"rendered":"Home"},"content":{"rendered":"
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\n\t\t\t \t\t\t\t Bienvenido a<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t

The Inside Story\n<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t\t

Su experiencia con la acondroplasia puede ser abrumadora, pero no est\u00e1 solo. Una comunidad de personas resilientes, cuidadores dedicados y profesionales m\u00e9dicos experimentados est\u00e1 aqu\u00ed para ofrecer orientaci\u00f3n, apoyo y experiencia, asegur\u00e1ndose de que usted y su hijo tengan recursos para prosperar en cada paso del camino.<\/strong><\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n\n

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La acondroplasia es solo parte de ellos y no es su vida. Su nombre es Sarah, no acondroplasia… la acondroplasia es solo su afecci\u00f3n.<\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t Jennifer, cuidadora de Sarah de 5 a\u00f1os* <\/cite>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/blockquote>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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Comprensi\u00f3n de la achondroplasia<\/strong><\/h2>\n

Profundice su entendimiento de la acondroplasia para conocer su causa y c\u00f3mo el crecimiento \u00f3seo inhibido puede afectar al desarrollo.<\/p>\n

M\u00e1s informaci\u00f3n<\/a><\/p>\n <\/div>\n \t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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Conozca a otras personas de la comunidad<\/h2>\n

Los eventos de Rising Love re\u00fanen a ni\u00f1os con acondroplasia y a sus familias para compartir experiencias, ofrecer apoyo y establecer amistades duraderas. Conozca a los miembros de su comunidad local de acondroplasia en una reuni\u00f3n familiar cerca de usted.<\/p>\n

\u00danase a un evento<\/a><\/p>\n <\/div>\n \n

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Conozca a Raegan y a su madre, Raechel<\/h4>\n

Raegan tiene una personalidad extraordinaria y le encanta re\u00edrse. Su madre, Raechel, es una planificadora que siempre tiene en cuenta el panorama general. Vea c\u00f3mo su comunidad las ayud\u00f3 a encontrar pertenencia y comprensi\u00f3n.<\/p>\n

Ver el v\u00eddeo<\/a><\/p>\n <\/div>\n \t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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Sea parte de Inside Story\n<\/h2>\n\t\t\t\t\t\t \t\t\t\t\t\t \t\t\t\t\t\t

Obtenga acceso a informaci\u00f3n sobre la acondroplasia, incluidos los \u00faltimos avances en investigaci\u00f3n y los pr\u00f3ximos eventos en su zona. Todo se env\u00eda directamente a su bandeja de entrada.<\/p>\n\t\t\t\t\t\t \t\t\t\t\t <\/div>\n\t\t\t\t\t

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Mant\u00e9ngase conectado<\/a><\/p>\n <\/div>\n\t\t\t\t\t <\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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*Los nombres se anonimizaron.<\/small><\/p>\n <\/div>\n <\/div>\n <\/div>\n<\/div>\n\n

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Referencias:\n<\/h4>\n\t\t\t\t\t\t
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  1. Horton WA, Hall JG, Hecht JT. Achondroplasia. Lancet<\/em>. 2007;370(9582):162-172.\n<\/span><\/li>\n
  2. Hoover-Fong J, Cheung MS, Fano V, et al. Lifetime impact of achondroplasia: current evidence and perspectives on the natural history. Bone<\/em>. 2021;146:115872.\n<\/span><\/li>\n
  3. Constantinides C, Landis SH, Jarrett J, et al. Quality of life, physical functioning, and psychosocial function among patients with achondroplasia: a targeted literature review. Disabil Rehabil<\/em>. 2022;44(21):6166-6178.\n<\/span><\/li>\n <\/ol>\n\t\t\t\t\t<\/div>\n\t<\/div>\n<\/div>\n\n
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    Eventos<\/a><\/p>\n <\/div>\n

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    Apoyo a la comunidad<\/a><\/p>\n <\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"class_list":["post-11","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\nAchondroplasia Information & Support | Get the Inside Story<\/title>\n<meta name=\"description\" content=\"Discover guidance, support, and expertise from within the achondroplasia community.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/achondroplasia.biomarin.com\/es-us\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Achondroplasia Information & 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