{"id":3149,"date":"2025-04-09T16:03:28","date_gmt":"2025-04-09T16:03:28","guid":{"rendered":"https:\/\/achondroplasia.biomarin.com\/en-us\/?page_id=3149"},"modified":"2026-04-30T16:33:05","modified_gmt":"2026-04-30T16:33:05","slug":"events","status":"publish","type":"page","link":"https:\/\/achondroplasia.biomarin.com\/en-us\/events\/","title":{"rendered":"Events"},"content":{"rendered":"<div id=\"acf-block-6865606eb8eb3\" class=\"block wrapped-content bg-band bg-band-secondary block-zero-top block-zero-bottom\">\n    <div class=\"wrapper\">\n        <div class=\"inner-wrapper\">\n                \n<div id=\"acf-block-6865606eb9195\" class=\"block-wysiwyg\">\n            <h1>Attend an achondroplasia event<\/h1>\n<p class=\"larger-text\" style=\"color: #013a66\">Get a chance to hear experts from the achondroplasia community share their perspectives and connect with local families who understand your experience. We hope to see you at a future event!<\/p>\n<p class=\"larger-text\" style=\"color: #013a66\">Join <a href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/stay-connected\/\">the Inside Story<\/a> to stay notified of upcoming events or to get in touch with an\u2028experienced BioMarin representative.<\/p>\n    <\/div>\n        <\/div>\n    <\/div>\n<\/div>\n\n<div id=\"acf-block-6865606eb97b6\" class=\"block event-listing\">\n\t<div class=\"block filter-header\">\n        <div class=\"wrapper\">\n            <div class=\"inner-wrapper\">\n                            <div class=\"listing-title\">\n                    <h2>&nbsp;\n<\/h2>\n                <\/div>\n            \n                        <\/div>\n        <\/div>\n    <\/div>\n\n    <div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n                                                                                        \n                        \n                        \n                                                                                                                                                                                                                                                                                                                        \n                                                                                                        \n                                                <article class=\"event rising-love\">\n                            <div class=\"event-split-layout\">\n\n                                                                    <div class=\"event-image-block\">\n                                        <div class=\"event-image\" style=\"background-image: url(https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2025\/07\/RisingLove-image2-1.png?v=0.97);\">\n                                                                                            <p class=\"event-date-flag\">\n                                                    May 29                                                <\/p>\n                                                                                    <\/div>\n                                    <\/div>\n                                \n                                <div class=\"event-details\">\n                                    <div class=\"event-information\">\n                                                                                                                                <p class=\"event-type event-type-event\">In-person<\/p>\n                                        \n                                                                                    <h3>Rising Love in Katy\n<\/h3>\n                                                                                                                            <p>Join us for a free, family-friendly event and meet other families from the local achondroplasia community. Enjoy a live reading of <em>Rising Love<\/em>, a book written for children with achondroplasia.<\/p>\n                                        \n                                                                                    <p class=\"event-date-flag\">\n                                                <span>Friday, May 29                                                 at 6:00 PM CT                                                <\/span>\n                                            <\/p>\n                                        \n                                                                                    <p class=\"event-location\">\n                                                                                                <strong>23235 Kingsplace Dr Katy<\/strong>,\n<strong>TX 77494<\/strong>\n                                            <\/p>\n                                        \n                                                                                                                                                                                                                                                                                                                                                                    <p><a class=\"button\" href=\"https:\/\/pages.bmrn.com\/LE-26-05-29-ACH-CMP-13569-Rising-Love-Katy_Register.html\" target=\"_blank\">Register Now<\/a><\/p>\n                                                                            <\/div>\n\n                                                                    <\/div>\n                            <\/div>\n                        <\/article>\n                                            \n                        \n                        \n                                                                                                                                                                                                                                                                                                                        \n                                                                                                        \n                                                <article class=\"event event-display-speakers inside-story\">\n                            <div class=\"event-split-layout\">\n\n                                                                    <div class=\"event-image-block\">\n                                        <div class=\"event-image\" style=\"background-image: url(https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2026\/04\/Hero-Image.png?v=0.97);\">\n                                                                                            <p class=\"event-date-flag\">\n                                                    Jun 4                                                <\/p>\n                                                                                    <\/div>\n                                    <\/div>\n                                \n                                <div class=\"event-details\">\n                                    <div class=\"event-information\">\n                                                                                                                                <p class=\"event-type event-type-webinar\">Webinar<\/p>\n                                        \n                                                                                    <h3>Understanding the ACH Journey\n<\/h3>\n                                                                                \n                                                                                    <p class=\"event-date-flag\">\n                                                <span>Thursday, June 4                                                 at 5:00 PM CT                                                <\/span>\n                                            <\/p>\n                                        \n                                        \n                                                                                                                                                                                                                                                                                                                                                                    <p><a class=\"button\" href=\"https:\/\/pages.bmrn.com\/WB-26-06-04-ACH-CMP-13397-Understanding_Register.html\" target=\"_blank\">Register Now<\/a><\/p>\n                                                                            <\/div>\n\n                                                                            <div class=\"event-speakers\">\n                                                                                            <h4 class=\"speaker-title\">Featuring\n<\/h4>\n                                                                                        <ul class=\"speakers\">\n                                                                                                                                                                                                                                                                <li>\n                                                                                                                    <div class=\"speaker-avatar\">\n                                                                <img decoding=\"async\" class=\"\" src=\"https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2026\/02\/Legare_Janet_new.jpg?v=0.97\" alt=\"\" \/>                                                            <\/div>\n                                                                                                                <div class=\"speaker-name\">\n                                                                                                                            <h3>Janet Legare, MD<\/h3>\n                                                                                                                                                                                        <p>Pediatrician in Clinical Genetics<br \/>\nDirector Midwest Regional Bone Dysplasia Clinic, University of Wisconsin<\/p>\n                                                                                                                    <\/div>\n                                                    <\/li>\n                                                                                            <\/ul>\n                                        <\/div>\n                                                                    <\/div>\n                            <\/div>\n                        <\/article>\n                                            \n                        \n                        \n                                                                                                                                                                                                                                                                                                                        \n                                                                                                        \n                                                <article class=\"event community-events\">\n                            <div class=\"event-split-layout\">\n\n                                                                    <div class=\"event-image-block\">\n                                        <div class=\"event-image\" style=\"background-image: url(https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2026\/05\/Community-Camp-Ellellbee-Georgia-26-1.png?v=0.97);\">\n                                                                                            <p class=\"event-date-flag\">\n                                                    Aug 21-23                                                <\/p>\n                                                                                    <\/div>\n                                    <\/div>\n                                \n                                <div class=\"event-details\">\n                                    <div class=\"event-information\">\n                                                                                                                                <p class=\"event-type event-type-event\">In-person<\/p>\n                                        \n                                                                                    <h3>Camp Ellellbee \u2014 Winder\n<\/h3>\n                                                                                                                            <p><strong>Brought to you by: Little Legs Big Heart &amp; GutMonkey<\/strong><\/p>\n<p>An empowering weekend celebrating resilience, community, and connection for individuals with Skeletal Dysplasia and their families and joy takes center stage.<br \/>\nSponsored by an independent grant from BioMarin.<\/p>\n                                        \n                                                                                    <p class=\"event-date-flag\">\n                                                <span>Friday, August 21                                                 &#8211; Sunday, August 23                                                <\/span>\n                                            <\/p>\n                                        \n                                                                                    <p class=\"event-location\">\n                                                                                                <b>Winder, Georgia<\/b>\n                                            <\/p>\n                                        \n                                                                                                                                                                                                                                                                                                                                                                    <p><a class=\"button\" href=\"https:\/\/www.littlelegsbigheartfoundation.org\/camp-registration\" target=\"_blank\">Pre Register<\/a><\/p>\n                                                                            <\/div>\n\n                                                                    <\/div>\n                            <\/div>\n                        <\/article>\n                                            \n                        \n                        \n                                                                                                                                                                                                                                                                                                                        \n                                                                                                        \n                                                <article class=\"event community-events\">\n                            <div class=\"event-split-layout\">\n\n                                                                    <div class=\"event-image-block\">\n                                        <div class=\"event-image\" style=\"background-image: url(https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2026\/05\/Community-Camp-Ellellbee-NewEngland-26.png?v=0.97);\">\n                                                                                            <p class=\"event-date-flag\">\n                                                    Aug 28-30                                                <\/p>\n                                                                                    <\/div>\n                                    <\/div>\n                                \n                                <div class=\"event-details\">\n                                    <div class=\"event-information\">\n                                                                                                                                <p class=\"event-type event-type-event\">In-person<\/p>\n                                        \n                                                                                    <h3>Camp Ellellbee \u2014 Casco\n<\/h3>\n                                                                                                                            <p><strong>Brought to you by: Little Legs Big Heart &amp; GutMonkey<\/strong><\/p>\n<p>An empowering weekend celebrating resilience, community, and connection for individuals with Skeletal Dysplasia and their families and joy takes center stage.<br \/>\nSponsored by an independent grant from BioMarin.<\/p>\n                                        \n                                                                                    <p class=\"event-date-flag\">\n                                                <span>Friday, August 28                                                 &#8211; Sunday, August 30                                                <\/span>\n                                            <\/p>\n                                        \n                                                                                    <p class=\"event-location\">\n                                                                                                <b>Casco, Maine<\/b>\n                                            <\/p>\n                                        \n                                                                                                                                                                                                                                                                                                                                                                    <p><a class=\"button\" href=\"https:\/\/www.littlelegsbigheartfoundation.org\/camp-registration\" target=\"_blank\">Pre Register<\/a><\/p>\n                                                                            <\/div>\n\n                                                                    <\/div>\n                            <\/div>\n                        <\/article>\n                                            \n                        \n                        \n                                                                                                                                                                                                                                                                                                                        \n                                                                                                        \n                                                <article class=\"event community-events\">\n                            <div class=\"event-split-layout\">\n\n                                                                    <div class=\"event-image-block\">\n                                        <div class=\"event-image\" style=\"background-image: url(https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2026\/05\/Community-Camp-Ellellbee-California-26.png?v=0.97);\">\n                                                                                            <p class=\"event-date-flag\">\n                                                    Sep 11-13                                                <\/p>\n                                                                                    <\/div>\n                                    <\/div>\n                                \n                                <div class=\"event-details\">\n                                    <div class=\"event-information\">\n                                                                                                                                <p class=\"event-type event-type-event\">In-person<\/p>\n                                        \n                                                                                    <h3>Camp Ellellbee \u2014 Boulder Creek\n<\/h3>\n                                                                                                                            <p><strong>Brought to you by: Little Legs Big Heart &amp; GutMonkey<\/strong><\/p>\n<p>An empowering weekend celebrating resilience, community, and connection for individuals with Skeletal Dysplasia and their families and joy takes center stage.<br \/>\nSponsored by an independent grant from BioMarin.<\/p>\n                                        \n                                                                                    <p class=\"event-date-flag\">\n                                                <span>Friday, September 11                                                 &#8211; Sunday, September 13                                                <\/span>\n                                            <\/p>\n                                        \n                                                                                    <p class=\"event-location\">\n                                                                                                <b>Boulder Creek, CA<\/b>\n                                            <\/p>\n                                        \n                                                                                                                                                                                                                                                                                                                                                                    <p><a class=\"button\" href=\"https:\/\/www.littlelegsbigheartfoundation.org\/camp-registration\" target=\"_blank\">Pre Register<\/a><\/p>\n                                                                            <\/div>\n\n                                                                    <\/div>\n                            <\/div>\n                        <\/article>\n                                            \n                        \n                        \n                                                                                                                                                                                                                                                                                                                        \n                                                                                                        \n                                                <article class=\"event community-events\">\n                            <div class=\"event-split-layout\">\n\n                                                                    <div class=\"event-image-block\">\n                                        <div class=\"event-image\" style=\"background-image: url(https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2026\/05\/Community-Camp-Ellellbee-Texas-26-1.png?v=0.97);\">\n                                                                                            <p class=\"event-date-flag\">\n                                                    Oct 2-4                                                <\/p>\n                                                                                    <\/div>\n                                    <\/div>\n                                \n                                <div class=\"event-details\">\n                                    <div class=\"event-information\">\n                                                                                                                                <p class=\"event-type event-type-event\">In-person<\/p>\n                                        \n                                                                                    <h3>Camp Ellellbee \u2014 Burton\n<\/h3>\n                                                                                                                            <p><strong>Brought to you by: Little Legs Big Heart &amp; GutMonkey<\/strong><\/p>\n<p>An empowering weekend celebrating resilience, community, and connection for individuals with Skeletal Dysplasia and their families and joy takes center stage.<br \/>\nSponsored by an independent grant from BioMarin.<\/p>\n                                        \n                                                                                    <p class=\"event-date-flag\">\n                                                <span>Friday, October 2                                                 &#8211; Sunday, October 4                                                <\/span>\n                                            <\/p>\n                                        \n                                                                                    <p class=\"event-location\">\n                                                                                                <b>Burton, Texas<\/b>\n                                            <\/p>\n                                        \n                                                                                                                                                                                                                                                                                                                                                                    <p><a class=\"button\" href=\"https:\/\/www.littlelegsbigheartfoundation.org\/camp-registration\" target=\"_blank\">Pre Register<\/a><\/p>\n                                                                            <\/div>\n\n                                                                    <\/div>\n                            <\/div>\n                        <\/article>\n                                            \n                        \n                        \n                                                                                                                                                                                                                                                                                                                        \n                                                                                                        \n                                                <article class=\"event community-events\">\n                            <div class=\"event-split-layout\">\n\n                                                                    <div class=\"event-image-block\">\n                                        <div class=\"event-image\" style=\"background-image: url(https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2026\/05\/Community-Camp-Ellellbee-Utah-26-1.png?v=0.97);\">\n                                                                                            <p class=\"event-date-flag\">\n                                                    Oct 16-18                                                <\/p>\n                                                                                    <\/div>\n                                    <\/div>\n                                \n                                <div class=\"event-details\">\n                                    <div class=\"event-information\">\n                                                                                                                                <p class=\"event-type event-type-event\">In-person<\/p>\n                                        \n                                                                                    <h3>Camp Ellellbee \u2014 Park City\n<\/h3>\n                                                                                                                            <p><strong>Brought to you by: Little Legs Big Heart &amp; GutMonkey<\/strong><\/p>\n<p>An empowering weekend celebrating resilience, community, and connection for individuals with Skeletal Dysplasia and their families and joy takes center stage.<br \/>\nSponsored by an independent grant from BioMarin.<\/p>\n                                        \n                                                                                    <p class=\"event-date-flag\">\n                                                <span>Friday, October 16                                                 &#8211; Sunday, October 18                                                <\/span>\n                                            <\/p>\n                                        \n                                                                                    <p class=\"event-location\">\n                                                                                                <strong>Park City, Utah<\/strong>\n                                            <\/p>\n                                        \n                                                                                                                                                                                                                                                                                                                                                                    <p><a class=\"button\" href=\"https:\/\/www.littlelegsbigheartfoundation.org\/camp-registration\" target=\"_blank\">Pre Register<\/a><\/p>\n                                                                            <\/div>\n\n                                                                    <\/div>\n                            <\/div>\n                        <\/article>\n                                                \t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-69d5180c5ed9b\" class=\"block boxed-content top-border\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"box\">\n\t\t\t\t                    <h2 class=\"h3\">Explore a treatment option\n<\/h2>\n                \t\t\t\t\n<div id=\"acf-block-69d5180c5ef99\" class=\"block-wysiwyg\">\n            <p>Discover a treatment option for infants and children with achondroplasia.<\/p>\n<p><a class=\"button button-arrow\" href=\"https:\/\/www.voxzogo.com\/en-us\/\" target=\"_blank\" rel=\"noopener\">Learn more<\/a><\/p>\n    <\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-67d29619837c8\" class=\"block call-to-action block-zero-top block-zero-bottom\">\n    <div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"box\" style=\"\">\n\t\t\t\t<div class=\"overlay\"><\/div>\n\t\t\t\t<div class=\"cta-content\">\n\t\t\t\t                            <div class=\"cta-image\">\n                            <img decoding=\"async\" class=\"\" src=\"https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2025\/02\/EMAIL_icon@2x-1.png?v=0.97\" alt=\"\" \/>                        <\/div>\n                    \t\t\t\t\t<div class=\"cta-content-main\">\n                        <div class=\"content-block\">\n\t\t\t\t\t        \t\t\t\t\t        \t\t\t\t\t\t        <h2 class=\"h3\">Join the inside story\n<\/h2>\n\t\t\t\t\t\t    \t\t\t\t\t\t    \t\t\t\t\t\t        <p>Gain access to information about achondroplasia, including educational resources and upcoming events in your area. All sent directly to your inbox.<\/p>\n\t\t\t\t\t\t    \t\t\t\t\t    <\/div>\n\t\t\t\t\t                                <div class=\"content-block\">\n                                <p><a class=\"button button-ghost button-arrow\" href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/stay-connected\/\" target=\"_self\">Stay connected<\/a><\/p>\n                            <\/div>\n\t\t\t\t\t                        <\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-69d5589660ec2\" class=\"block wrapped-content\">\n    <div class=\"wrapper\">\n        <div class=\"inner-wrapper\">\n                \n<div id=\"acf-block-69d5589661275\" class=\"block-wysiwyg\">\n            <p><strong>References:<\/strong><\/p>\n<ul>\n<li><small>Hoover-Fong J, Cheung MS, Fano V, et al. Lifetime impact of achondroplasia: current evidence and perspectives on the natural history. <em>Bone<\/em>. 2021;146:115872.<\/small><\/li>\n<li><small>Horton WA, Hall JG, JT. Achondroplasia. <em>Lancet<\/em>. 2007;370(9582):162-172.<\/small><\/li>\n<li><small>Witt S, Rohenkohl A, Bullinger M, et al. Understanding, assessing and improving health-related quality of life of young people with achondroplasia &#8211; a collaboration between a patient organization and academic medicine. <em>Pediatr Endocrinol Rev<\/em>. 2017;15(suppl 1):109-118.<\/small><\/li>\n<\/ul>\n    <\/div>\n        <\/div>\n    <\/div>\n<\/div>\n\n<div id=\"acf-block-6865606ebb46e\" class=\"block next-previous block-zero-top block-zero-bottom\">\n    <div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n            <div class=\"link link-prev\">\n                                    <p><a class=\"button button-text button-arrow button-arrow-left\" href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/self-care\/\" target=\"_self\">Self care<\/a><\/p>\n                            <\/div>\n            <div class=\"link link-next\">\n                                    <p><a class=\"button button-text button-arrow\" href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/\" target=\"_self\">Home<\/a><\/p>\n                            <\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"class_list":["post-3149","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - 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