{"id":2008,"date":"2025-02-20T09:46:16","date_gmt":"2025-02-20T09:46:16","guid":{"rendered":"https:\/\/achondroplasia.biomarin.com\/en-us\/?page_id=2008"},"modified":"2026-05-07T13:46:46","modified_gmt":"2026-05-07T13:46:46","slug":"resources","status":"publish","type":"page","link":"https:\/\/achondroplasia.biomarin.com\/en-us\/resources\/","title":{"rendered":"Resources"},"content":{"rendered":"<div id=\"acf-block-67e14100646c2\" class=\"hero hero-small-title hero-large-first-para\">\n            <div class=\"hero-background-image hero-background-image-desktop\" style=\"background-image: url(https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2025\/03\/edu-cropped.png?v=0.97);\"><\/div>\n\t    <div class=\"hero-background-image hero-background-image-tablet\" style=\"background-image: url(https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2025\/03\/hero-2-tablet-v2.png?v=0.97);\"><\/div>\n        <div class=\"hero-background-image hero-background-image-mobile\" style=\"background-image: url(https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2026\/05\/resources.png?v=0.97);\"><\/div>\n    \t<div class=\"overlay\"><\/div>\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"hero-content\">\n\t\t\t    \t\t\t\t\t\t\t\t\t\t\t\t    <h1>A growing collection of helpful resources\n<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t\t    <p>Discover resources to connect with the community, learn from clinical experts, support care decisions, and more.<\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n\n<div id=\"acf-block-67c077f564e9b\" class=\"block quote bg-primary quote-full block-zero-top block-zero-bottom\">\n    <div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"box\">\n\t\t\t\t<div class=\"quote-content\">\n\t\t\t\t    \t\t\t\t\t<div class=\"content-block\">\n\t\t\t\t\t\t<blockquote>\n\t\t\t\t\t\t    \t\t\t\t\t\t\t    <p>The most important thing with caring for my daughter is giving her a set of tools.<\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t    <cite>Stephanie, mother of Katie, 9 years old*  <\/cite>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/blockquote>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-67c07950ca486\" class=\"block boxed-content top-border block-tight-top block-zero-bottom boxed-content-white\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"box\">\n\t\t\t\t                    <h2 class=\"h3\">Downloadable resources\n<\/h2>\n                \t\t\t\t\n<div id=\"acf-block-67c07950ca83a\" class=\"image-text-block content-align-center\">\n            <div class=\"image-block medium\">\n            <figure>\n                <div class=\"image image-rounded\">\n                    <img decoding=\"async\" class=\"\" src=\"https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2026\/04\/the-chandler-project-Logo-1.svg\" alt=\"\" \/>                <\/div>\n            <\/figure>\n        <\/div>\n        <div class=\"content-block\">\n                    <h3>What is achondroplasia?\n<\/h3>\n                            <p>This overview takes a look at achondroplasia, including its genetic cause and how it inhibits bone growth.<\/p>\n                                            <p><a class=\"button button-download\" href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2025\/07\/What-is-Achondroplasia-Resource.pdf?v=0.97\" target=\"_blank\">Download PDF<\/a><\/p>\n                        <\/div>\n<\/div>\n\n<div id=\"acf-block-67c07950ca7a3\" class=\"image-text-block content-align-center\">\n            <div class=\"image-block medium\">\n            <figure>\n                <div class=\"image image-rounded\">\n                    <img decoding=\"async\" class=\"\" src=\"https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2025\/02\/Growth-Charts-e1742234432612.png?v=0.97\" alt=\"\" \/>                <\/div>\n            <\/figure>\n        <\/div>\n        <div class=\"content-block\">\n                    <h3>Achondroplasia growth charts\n<\/h3>\n                            <p>These growth curves are an important tool to track, predict, and evaluate growth.<\/p>\n                                            <p><a class=\"button button-download\" href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2025\/03\/Achondroplasia-Growth-Curves.pdf?v=0.97\" target=\"_blank\">Download PDF<\/a><\/p>\n                        <\/div>\n<\/div>\n\n<div id=\"acf-block-67c07950ca83a\" class=\"image-text-block content-align-center\">\n            <div class=\"image-block medium\">\n            <figure>\n                <div class=\"image image-rounded\">\n                    <img decoding=\"async\" class=\"\" src=\"https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2025\/03\/AAP_Guidelines_thumbnail.jpg?v=0.97\" alt=\"\" \/>                <\/div>\n            <\/figure>\n        <\/div>\n        <div class=\"content-block\">\n                    <h3>Medical guidelines for achondroplasia\n<\/h3>\n                            <p>A summary of expert guidelines that outline how to monitor for complications associated with achondroplasia and help discuss them with your care team.<\/p>\n                                            <p><a class=\"button button-download\" href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2025\/03\/AAP_Summary_of_Guidelines_Achondroplasia.pdf?v=0.97\" target=\"_blank\">Download PDF<\/a><\/p>\n                        <\/div>\n<\/div>\n\n<div id=\"acf-block-67c07950ca83a\" class=\"image-text-block content-align-center\">\n            <div class=\"image-block medium\">\n            <figure>\n                <div class=\"image image-rounded\">\n                    <img decoding=\"async\" class=\"\" src=\"https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2025\/03\/Rising_Love_thumbnail.jpg?v=0.97\" alt=\"\" \/>                <\/div>\n            <\/figure>\n        <\/div>\n        <div class=\"content-block\">\n                    <h3><em>Rising Love<\/em> children&#8217;s book\n<\/h3>\n                            <p>The inspiration for Rising Love events\u2014this fun and educational book follows 4 unique kids in families where achondroplasia is just a part of life.<\/p>\n                                            <p><a class=\"button button-download\" href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2025\/05\/ACH-Rising-Love-Childrens-Book-Digital.pdf?v=0.97\" target=\"_blank\">Download PDF<\/a><\/p>\n                        <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-67bbf359a7f7b\" class=\"block cards cards-2-col bg-band bg-band-secondary block-zero-top block-zero-bottom\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"cards-title\">\n\t\t\t    \t\t\t\t\t\t\t<\/div>\n\t\t\t<div class=\"cards-wrapper\">\n\t\t\t    \n<div id=\"acf-block-67bbf359a86df\" class=\"card card-fixed-button\" data-muted-autoplay=\"false\">\n        <div class=\"card-content\">\n                            <h4>Learn from the community\n<\/h4>\n        \n                                                                                                            <p>Meet local members of the achondroplasia community or hear from experienced healthcare professionals in person or virtually.<\/p>\n                                                                                                                                                                                                                                                                        \n                                                                                        <\/div>\n                                <div class=\"card-actions\">\n                            \n                            <p><a class=\"button button-arrow\" href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/events\/\" target=\"_self\">Join an event<\/a><\/p>\n                                                                                    <\/div>\n<\/div>\n\n<div id=\"acf-block-67bbf359a85df\" class=\"card card-fixed-button\" data-muted-autoplay=\"false\">\n        <div class=\"card-content\">\n                            <h4>Caring for yourself\n<\/h4>\n        \n                                                                                                            <p>Self care is essential, especially when navigating the highs and lows of a new diagnosis. See the simple steps you can take to make sure your emotional health is a priority.<\/p>\n                                                                                                                                                                                                                                                                        \n                                                                                        <\/div>\n                                <div class=\"card-actions\">\n                            \n                            <p><a class=\"button button-arrow\" href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/self-care\/\" target=\"_self\">Explore tips<\/a><\/p>\n                                                                                    <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-67d29619837c8\" class=\"block call-to-action block-zero-top block-zero-bottom\">\n    <div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"box\" style=\"\">\n\t\t\t\t<div class=\"overlay\"><\/div>\n\t\t\t\t<div class=\"cta-content\">\n\t\t\t\t                            <div class=\"cta-image\">\n                            <img decoding=\"async\" class=\"\" src=\"https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2025\/02\/EMAIL_icon@2x-1.png?v=0.97\" alt=\"\" \/>                        <\/div>\n                    \t\t\t\t\t<div class=\"cta-content-main\">\n                        <div class=\"content-block\">\n\t\t\t\t\t        \t\t\t\t\t        \t\t\t\t\t\t        <h2 class=\"h3\">Join the inside story\n<\/h2>\n\t\t\t\t\t\t    \t\t\t\t\t\t    \t\t\t\t\t\t        <p>Gain access to information about achondroplasia, including educational resources and upcoming events in your area. All sent directly to your inbox.<\/p>\n\t\t\t\t\t\t    \t\t\t\t\t    <\/div>\n\t\t\t\t\t                                <div class=\"content-block\">\n                                <p><a class=\"button button-ghost button-arrow\" href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/stay-connected\/\" target=\"_self\">Stay connected<\/a><\/p>\n                            <\/div>\n\t\t\t\t\t                        <\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-67d408d2d96bb\" class=\"block wrapped-content block-tight-top\">\n    <div class=\"wrapper\">\n        <div class=\"inner-wrapper\">\n                \n<div id=\"acf-block-67d408d2d98c2\" class=\"block-wysiwyg\">\n            <p><strong>References: <\/strong><\/p>\n<ul>\n<li><small>Adedeji A, Witt S, Innig F, et al. Coping and quality of life of parents of children with achondroplasia-a narrative review. <em>Front Med (Lausanne)<\/em>. 2025;12:1500389.<\/small><\/li>\n<li><small>Foreman PK, van Kessel F, van Hoorn R, et al. Birth prevalence of achondroplasia: a systematic literature review and meta-analysis. <em>Am J Med Genet A<\/em>. 2020;182(10):2297-2316.<\/small><\/li>\n<li><small>Hoover-Fong J, Scott CI, Jones MC; Committee on Genetics. Health supervision for people with achondroplasia. <em>Pediatrics<\/em>. 2020;145(6):e20201010.<\/small><\/li>\n<li><small>Horton WA, Hall JG, JT. Achondroplasia. <em>Lancet<\/em>. 2007;370(9582):162-172.<\/small><\/li>\n<\/ul>\n    <\/div>\n        <\/div>\n    <\/div>\n<\/div>\n\n<div id=\"acf-block-67bbff01a68fb\" class=\"block next-previous\">\n    <div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n            <div class=\"link link-prev\">\n                                    <p><a class=\"button button-text button-arrow button-arrow-left\" href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/diagnosis\/\" target=\"_self\">Diagnosis<\/a><\/p>\n                            <\/div>\n            <div class=\"link link-next\">\n                                    <p><a class=\"button button-text button-arrow\" href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/self-care\/\" target=\"_self\">Self care<\/a><\/p>\n                            <\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"class_list":["post-2008","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Achondroplasia Resources | Helpful Resources &amp; Services<\/title>\n<meta name=\"description\" content=\"Explore helpful achondroplasia resources, find local healthcare providers, and connect with experienced members of the community.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/resources\/\" \/>\n<meta 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