{"id":2008,"date":"2025-02-20T09:46:16","date_gmt":"2025-02-20T09:46:16","guid":{"rendered":"https:\/\/achondroplasia.biomarin.com\/en-us\/?page_id=2008"},"modified":"2025-07-14T17:23:38","modified_gmt":"2025-07-14T17:23:38","slug":"resources","status":"publish","type":"page","link":"https:\/\/achondroplasia.biomarin.com\/en-us\/resources\/","title":{"rendered":"Resources"},"content":{"rendered":"<div id=\"acf-block-67e14100646c2\" class=\"hero hero-small-title\">\n            <div class=\"hero-background-image hero-background-image-desktop\" style=\"background-image: url(https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2025\/03\/edu-cropped.png?v=0.81);\"><\/div>\n\t    <div class=\"hero-background-image hero-background-image-tablet\" style=\"background-image: url(https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2025\/03\/hero-2-tablet-v2.png?v=0.81);\"><\/div>\n        <div class=\"hero-background-image hero-background-image-mobile\" style=\"background-image: url(https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2025\/03\/resources_mobile_hero2.jpg?v=0.81);\"><\/div>\n    \t<div class=\"overlay\"><\/div>\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"hero-content\">\n\t\t\t    \t\t\t\t\t\t\t\t\t\t\t\t    <h1>A growing collection of helpful resources\n<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t\t    <p><strong>Discover resources to connect with the community, learn from clinical experts, support care decisions, and more.<\/strong><\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n\n<div id=\"acf-block-67bd6f750240c\" class=\"block clinic-finder\" data-nonce=\"d453c16736\">\n    <div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"clinic-intro\">\n\t\t\t\t<h3>Find care near you<\/h3>\n\t\t\t\t\t\t\t\t    <p>Because achondroplasia is rare, it may be difficult to find doctors with the experience you need. Feel confident you&#8217;re finding specialized care for your child.<\/p>\n\t\t\t\t\t\t\t<\/div>\n\n\t\t\t<div class=\"tabbed-content\">\n\t\t\t\t<div class=\"tabbed-content\">\n\t\t\t\t\t<div class=\"box\">\n\t\t\t\t\t\t<div class=\"tab-content\">\n\t\t\t\t\t\t\t<div class=\"clinic-finder-form\">\n\t\t\t\t\t\t\t    \t\t\t\t\t\t\t\t    <p>Locate healthcare providers in your area who have experience caring for children with achondroplasia.<\/p>\n\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t<div class=\"form-item\">\n\t\t\t\t\t\t\t\t\t<div class=\"linear-input\">\n\t\t\t\t\t\t\t\t\t\t<input id=\"clinic-finder-address\" type=\"text\" class=\"text google-places-autocomplete\" placeholder=\"Enter an address\">\n\t\t\t\t\t\t\t\t\t\t<select id=\"clinic-finder-radius\" class=\"text text-short\">\n\t\t\t\t\t\t\t\t\t\t\t<option value=\"10\">Within 10 miles<\/option>\n\t\t\t\t\t\t\t\t\t\t\t<option value=\"20\">Within 20 miles<\/option>\n\t\t\t\t\t\t\t\t\t\t\t<option value=\"30\">Within 30 miles<\/option>\n\t\t\t\t\t\t\t\t\t\t\t<option value=\"40\">Within 40 miles<\/option>\n\t\t\t\t\t\t\t\t\t\t\t<option value=\"50\">Within 50 miles<\/option>\n\t\t\t\t\t\t\t\t\t\t\t<option value=\"100\">Within 100 miles<\/option>\n\t\t\t\t\t\t\t\t\t\t\t<option value=\"250\">Within 250 miles<\/option>\n\t\t\t\t\t\t\t\t\t\t\t<option value=\"300\">Within 300 miles<\/option>\n\t\t\t\t\t\t\t\t\t\t\t<option value=\"500\">Within 500 miles<\/option>\n\t\t\t\t\t\t\t\t\t\t<\/select>\n\t\t\t\t\t\t\t\t\t\t<input type=\"submit\" class=\"button\" value=\"Search\">\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t                                        <div class=\"footnote\">\n                                            <em>Search results are not comprehensive and do not reflect any endorsement or certifications from BioMarin.<\/br> This directory is available for any healthcare provider who chooses to be listed and may not reflect all healthcare professionals in your area.<\/em>                                        <\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\n\t\t\t\t\t\t\t<div class=\"no-results\" style=\"display:none;\">\n\t\t\t\t\t\t\t    \t\t\t\t\t\t\t        <p>There are no clinics available within the distance you specified. You can expand your search area, or search for a different location instead.<\/p>\n\t\t\t\t\t\t\t    \t\t\t\t\t\t\t<\/div>\n\n\t\t\t\t\t\t\t<div class=\"results\" style=\"display:none;\"><\/div>\n\n\t\t\t\t\t\t\t<div class=\"clinic-load-more\" style=\"display:none;\">\n\t\t\t\t\t\t\t    \t\t\t\t\t\t\t\t    <p><a class=\"button button-ghost\" href=\"#\">Load more<\/a><\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\n                            \t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"clinic-finder-terms-modal\" class=\"clinic-finder-terms white-popup-block mfp-hide\">\n\t<div class=\"box\">\n\t\t<p><a class=\"modal-close\" href=\"#\">Close terms<\/a><\/p>\n\t\t\t\t    <h1>Terms &amp; Conditions<\/h1>\n<ul>\n<li><strong>IMPORTANT:<\/strong> This Achondroplasia Doctor Finder provides information about healthcare professionals not affiliated with BioMarin Pharmaceutical Inc. (&#8220;BioMarin&#8221;).<\/li>\n<li>Healthcare professional enrollment and participation in the Achondroplasia Doctor Finder is voluntary and free of charge and is based solely on information provided by the listed healthcare professionals. The Achondroplasia Doctor Finder is open to all healthcare providers who opt in.<\/li>\n<li>BioMarin makes no express or implied warranties about the accuracy or completeness of information contained in this site\u2019s listings.<\/li>\n<li>Consult with your insurance provider and healthcare team and conduct your own research before selecting a healthcare provider.<\/li>\n<li>You are solely responsible for all communications or other interactions with any healthcare professional listed on the site.<\/li>\n<\/ul>\n<h2>By using this website, you agree that:<\/h2>\n<ul>\n<li>BioMarin makes no endorsement of, recommendations about, nor credentialing of any healthcare professional listed on the site, their insurance network status, or of the skills or services of any such healthcare professional.<\/li>\n<li>BioMarin is neither responsible nor liable for any care furnished by, or failure to provide care by, any healthcare professional identified using the [Disease] Doctor Finder.<\/li>\n<li>BioMarin is not responsible for verifying the accuracy of any licenses, skills, education, experience, or ability to practice of any healthcare professional listed on this site. You have the sole responsibility for choosing your healthcare provider and verifying that a particular healthcare professional has the appropriate qualifications and skills to provide medical care.<\/li>\n<li>BioMarin shall not, under any circumstance, be liable to you or any other person for any decision or action taken by you or any person arising from or related to information contained on this site<\/li>\n<\/ul>\n\t\t\n\t\t<div class=\"form-item check-item\">\n\t\t\t<input type=\"checkbox\" id=\"clinic-finder-accept-terms\">\n\t\t\t\t\t\t    <label for=\"clinic-finder-accept-terms\">By checking this box you have acknowledged that you have read and agree with the Terms and Conditions.<\/label>\n\t\t\t\t\t<\/div>\n\n\t\t<div class=\"form-item\">\n\t\t\t<input type=\"submit\" class=\"button\" value=\"Get Search Results\">\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-67c077f564e9b\" class=\"block quote bg-primary quote-full block-zero-top block-zero-bottom\">\n    <div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"box\">\n\t\t\t\t<div class=\"quote-content\">\n\t\t\t\t    \t\t\t\t\t<div class=\"content-block\">\n\t\t\t\t\t\t<blockquote>\n\t\t\t\t\t\t    \t\t\t\t\t\t\t    <p>The most important thing with caring for my daughter is giving her a set of tools.<\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t    <cite>Stephanie, caregiver to Katie, 9 years old*  <\/cite>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/blockquote>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-67c07950ca486\" class=\"block boxed-content top-border block-tight-top boxed-content-white\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"box\">\n\t\t\t\t                    <h2 class=\"h3\">Downloadable resources\n<\/h2>\n                \t\t\t\t\n<div id=\"acf-block-67c07950ca7a3\" class=\"image-text-block content-align-center bottom-border\">\n            <div class=\"image-block medium\">\n            <figure>\n                <div class=\"image image-rounded\">\n                    <img decoding=\"async\" class=\"\" src=\"https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2025\/02\/Growth-Charts-e1742234432612.png?v=0.81\" alt=\"\" \/>                <\/div>\n            <\/figure>\n        <\/div>\n        <div class=\"content-block\">\n                    <h3>Achondroplasia growth charts\n<\/h3>\n                            <p>These growth curves are an important tool to track, predict, and evaluate growth.<\/p>\n                                            <p><a class=\"button button-download\" href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2025\/03\/Achondroplasia-Growth-Curves.pdf?v=0.81\" target=\"_blank\">Download PDF<\/a><\/p>\n                        <\/div>\n<\/div>\n\n<div id=\"acf-block-67c07950ca83a\" class=\"image-text-block content-align-center bottom-border\">\n            <div class=\"image-block medium\">\n            <figure>\n                <div class=\"image image-rounded\">\n                    <img decoding=\"async\" class=\"\" src=\"https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2025\/07\/What-is-ACH-thumb.png?v=0.81\" alt=\"\" \/>                <\/div>\n            <\/figure>\n        <\/div>\n        <div class=\"content-block\">\n                    <h3>What is achondroplasia?\n<\/h3>\n                            <p>An overview of achondroplasia including how bone growth is inhibited throughout the body and its impact on overall health.<\/p>\n                                            <p><a class=\"button button-download\" href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2025\/07\/What-is-Achondroplasia-Resource.pdf?v=0.81\" target=\"_blank\">Download PDF<\/a><\/p>\n                        <\/div>\n<\/div>\n\n<div id=\"acf-block-67c07950ca83a\" class=\"image-text-block content-align-center bottom-border\">\n            <div class=\"image-block medium\">\n            <figure>\n                <div class=\"image image-rounded\">\n                    <img decoding=\"async\" class=\"\" src=\"https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2025\/03\/AAP_Guidelines_thumbnail.jpg?v=0.81\" alt=\"\" \/>                <\/div>\n            <\/figure>\n        <\/div>\n        <div class=\"content-block\">\n                    <h3>Guidelines for achondroplasia\n<\/h3>\n                            <p>A summary of expert guidelines that outline how to monitor for complications associated with achondroplasia and help discuss them with your care team.<\/p>\n                                            <p><a class=\"button button-download\" href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2025\/03\/AAP_Summary_of_Guidelines_Achondroplasia.pdf?v=0.81\" target=\"_blank\">Download PDF<\/a><\/p>\n                        <\/div>\n<\/div>\n\n<div id=\"acf-block-67c07950ca83a\" class=\"image-text-block content-align-center\">\n            <div class=\"image-block medium\">\n            <figure>\n                <div class=\"image image-rounded\">\n                    <img decoding=\"async\" class=\"\" src=\"https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2025\/03\/Rising_Love_thumbnail.jpg?v=0.81\" alt=\"\" \/>                <\/div>\n            <\/figure>\n        <\/div>\n        <div class=\"content-block\">\n                    <h3>Rising Love children&#8217;s book\n<\/h3>\n                            <p>The inspiration for Rising Love events\u2014this inspiring and educational book follows 4 unique kids in families where achondroplasia is just a part of life.<\/p>\n                                            <p><a class=\"button button-download\" href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2025\/05\/ACH-Rising-Love-Childrens-Book-Digital.pdf?v=0.81\" target=\"_blank\">Download PDF<\/a><\/p>\n                        <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-67bbf359a7f7b\" class=\"block cards cards-2-col bg-band bg-band-secondary block-zero-bottom\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"cards-title\">\n\t\t\t    \t\t\t\t\t\t\t<\/div>\n\t\t\t<div class=\"cards-wrapper\">\n\t\t\t    \n<div id=\"acf-block-67bbf359a86df\" class=\"card card-fixed-button\" data-muted-autoplay=\"false\">\n        <div class=\"card-content\">\n                            <h4>Meet others in the community\n<\/h4>\n        \n                                                                                                            <p>Rising Love events bring children with achondroplasia and their families together to share experiences, offer support, and make lasting friendships. Learn more about achondroplasia and meet members of your local community at a family-friendly gathering near you!<\/p>\n                                                                                                                                                                                                                                                                        \n                                                                                        <\/div>\n                                <div class=\"card-actions\">\n                            \n                            <p><a class=\"button button-arrow\" href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/events\/\" target=\"_self\">Join an event<\/a><\/p>\n                                                                                    <\/div>\n<\/div>\n\n<div id=\"acf-block-67bbf359a85df\" class=\"card card-fixed-button\" data-muted-autoplay=\"false\">\n        <div class=\"card-content\">\n                            <h4>Hear from experienced health professionals\n<\/h4>\n        \n                                                                                                            <p>Attend a virtual or in-person educational presentation led by a healthcare professional to gain a more comprehensive understanding of achondroplasia. Learn about these events and other resources by signing up to receive emails.<\/p>\n                                                                                                                                                                                                                                                                        \n                                                                                        <\/div>\n                                <div class=\"card-actions\">\n                            \n                            <p><a class=\"button button-arrow\" href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/stay-connected\/\" target=\"_self\">Stay connected<\/a><\/p>\n                                                                                    <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-67d29619837c8\" class=\"block call-to-action block-zero-top block-zero-bottom\">\n    <div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"box\" style=\"\">\n\t\t\t\t<div class=\"overlay\"><\/div>\n\t\t\t\t<div class=\"cta-content\">\n\t\t\t\t                            <div class=\"cta-image\">\n                            <img decoding=\"async\" class=\"\" src=\"https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2025\/02\/EMAIL_icon@2x-1.png?v=0.81\" alt=\"\" \/>                        <\/div>\n                    \t\t\t\t\t<div class=\"cta-content-main\">\n                        <div class=\"content-block\">\n\t\t\t\t\t        \t\t\t\t\t        \t\t\t\t\t\t        <h2 class=\"h3\">Join the inside story\n<\/h2>\n\t\t\t\t\t\t    \t\t\t\t\t\t    \t\t\t\t\t\t        <p>Gain access to information about achondroplasia, including the latest research advancements and upcoming events in your area. All sent directly to your inbox.<\/p>\n\t\t\t\t\t\t    \t\t\t\t\t    <\/div>\n\t\t\t\t\t                                <div class=\"content-block\">\n                                <p><a class=\"button button-ghost button-arrow\" href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/stay-connected\/\" target=\"_self\">Stay connected<\/a><\/p>\n                            <\/div>\n\t\t\t\t\t                        <\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-67d408d2d96bb\" class=\"block wrapped-content block-tight-top block-zero-bottom\">\n    <div class=\"wrapper\">\n        <div class=\"inner-wrapper\">\n                \n<div id=\"acf-block-67d408d2d98c2\" class=\"block-wysiwyg\">\n            <p><small>*Names have been anonymized.<\/small><\/p>\n    <\/div>\n        <\/div>\n    <\/div>\n<\/div>\n\n<div id=\"acf-block-67d2b2cbc259e\" class=\"block references\">\n    <div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t    \t\t\t    <h4>References:\n<\/h4>\n\t\t\t\t\t\t                <ol>\n                                                                                                                        <li><span>Foreman PK, van Kessel F, van Hoorn R, et al. Birth prevalence of achondroplasia: a systematic literature review and meta-analysis. <em>Am J Med Genet A<\/em>. 2020;182(10):2297-2316.\n<\/span><\/li>\n                                                                                                                                                <li><span>Savarirayan R, Ireland P, Irving M, et al. International Consensus Statement on the diagnosis, multidisciplinary management and lifelong care of individuals with achondroplasia. <em>Nat Rev Endocrinol<\/em>. 2022;18(3):173-189.\n<\/span><\/li>\n                                                                                                                                                <li><span>Hoover-Fong J, Scott CI, Jones MC; AAP Committee on Genetics. Health supervision for people with achondroplasia. <em>Pediatrics<\/em>. 2020;145(6):e20201010.\n<\/span><\/li>\n                                                                                                                                                <li><span>Horton WA, Hall JG, Hecht JT. Achondroplasia. <em>Lancet<\/em>. 2007;370(9582):162-172.\n<\/span><\/li>\n                                                            <\/ol>\n\t\t\t\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-67bbff01a68fb\" class=\"block next-previous\">\n    <div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n            <div class=\"link link-prev\">\n                                    <p><a class=\"button button-text button-arrow button-arrow-left\" href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/about-achondroplasia\/\" target=\"_self\">About Achondroplasia<\/a><\/p>\n                            <\/div>\n            <div class=\"link link-next\">\n                                    <p><a class=\"button button-text button-arrow\" href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/events\/\" target=\"_self\">Events<\/a><\/p>\n                            <\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"class_list":["post-2008","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.4 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Achondroplasia Resources | Helpful Resources &amp; Services<\/title>\n<meta name=\"description\" content=\"Explore helpful achondroplasia resources, find local healthcare providers, and connect with experienced members of the community.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/resources\/\" \/>\n<meta property=\"og:locale\" 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