{"id":11,"date":"2023-07-05T17:19:08","date_gmt":"2023-07-05T17:19:08","guid":{"rendered":"https:\/\/achdsepatient-dev-001.azurewebsites.net\/en-us\/?page_id=11"},"modified":"2026-04-07T09:47:52","modified_gmt":"2026-04-07T09:47:52","slug":"home","status":"publish","type":"page","link":"https:\/\/achondroplasia.biomarin.com\/en-us\/","title":{"rendered":"Home"},"content":{"rendered":"
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\n\t\t\t \t\t\t\t Welcome to<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t

The Inside Story\n<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t\t

Your experience with achondroplasia can feel overwhelming, but you\u2019re not alone. A community of resilient individuals, dedicated caregivers, and experienced medical professionals is here to offer guidance, support, and expertise\u2014ensuring you and your child have resources to thrive every step of the way.<\/strong><\/p>\n

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Achondroplasia is just a part of who they are and it is not their life. Her name is Sarah, not achondroplasia…achondroplasia just happens to be her condition.<\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t Jennifer, Caregiver to Sarah, 5 years old* <\/cite>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/blockquote>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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Understanding achondroplasia<\/h2>\n

Dive deeper into achondroplasia to learn about its cause and how inhibited bone growth can affect development.<\/p>\n

Learn more<\/a><\/p>\n <\/div>\n \t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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Meet others in the community<\/h2>\n

Rising Love events bring children with achondroplasia and their families together to share experiences, offer support, and make lasting friendships. Meet members of your local achondroplasia community at a family-friendly gathering near you!<\/p>\n

Join an event<\/a><\/p>\n <\/div>\n \n

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Get to know Raegan and her mom, Raechel<\/h4>\n

Raegan has a larger-than-life personality and loves to laugh. Her mother, Raechel, is a planner who always has an eye on the big picture. See how their community helped them find belonging and understanding.<\/p>\n

Watch the video<\/a><\/p>\n <\/div>\n \t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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Join the inside story\n<\/h2>\n\t\t\t\t\t\t \t\t\t\t\t\t \t\t\t\t\t\t

Gain access to information about achondroplasia, including the latest research advancements and upcoming events in your area. All sent directly to your inbox.<\/p>\n\t\t\t\t\t\t \t\t\t\t\t <\/div>\n\t\t\t\t\t

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Stay connected<\/a><\/p>\n <\/div>\n\t\t\t\t\t <\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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*Names have been anonymized.<\/small><\/p>\n <\/div>\n <\/div>\n <\/div>\n<\/div>\n\n

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References:\n<\/h4>\n\t\t\t\t\t\t
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  1. Horton WA, Hall JG, Hecht JT. Achondroplasia. Lancet<\/em>. 2007;370(9582):162-172.\n<\/span><\/li>\n
  2. Hoover-Fong J, Cheung MS, Fano V, et al. Lifetime impact of achondroplasia: current evidence and perspectives on the natural history. Bone<\/em>. 2021;146:115872.\n<\/span><\/li>\n
  3. Constantinides C, Landis SH, Jarrett J, et al. Quality of life, physical functioning, and psychosocial function among patients with achondroplasia: a targeted literature review. Disabil Rehabil<\/em>. 2022;44(21):6166-6178.\n<\/span><\/li>\n <\/ol>\n\t\t\t\t\t<\/div>\n\t<\/div>\n<\/div>\n\n
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    Events<\/a><\/p>\n <\/div>\n

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    Community Support<\/a><\/p>\n <\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"class_list":["post-11","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\nAchondroplasia Information & Support | Get the Inside Story<\/title>\n<meta name=\"description\" content=\"Discover guidance, support, and expertise from within the achondroplasia community.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Achondroplasia Information & 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