{"id":11,"date":"2023-07-05T17:19:08","date_gmt":"2023-07-05T17:19:08","guid":{"rendered":"https:\/\/achdsepatient-dev-001.azurewebsites.net\/en-us\/?page_id=11"},"modified":"2026-04-30T12:47:52","modified_gmt":"2026-04-30T12:47:52","slug":"home","status":"publish","type":"page","link":"https:\/\/achondroplasia.biomarin.com\/en-us\/","title":{"rendered":"Home"},"content":{"rendered":"<div id=\"acf-block-67dc3990dee73\" class=\"hero hero-large-first-para\">\n            <div class=\"hero-background-image hero-background-image-desktop\" style=\"background-image: url(https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2025\/03\/Hero-2000x800.png);\"><\/div>\n\t    <div class=\"hero-background-image hero-background-image-tablet\" style=\"background-image: url(https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2026\/04\/Hero-Image.png?v=0.93);\"><\/div>\n        <div class=\"hero-background-image hero-background-image-mobile\" style=\"background-image: url(https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2025\/03\/home_hero.jpg?v=0.93);\"><\/div>\n    \t<div class=\"overlay\"><\/div>\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"hero-content\">\n\t\t\t    \t\t\t\t    <span class=\"section-title\">Welcome to<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t    <h1>The Inside Story\n<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t\t    <p>Uncover a community of unique individuals, dedicated caregivers, and medical professionals sharing their insider perspectives on raising a child with achondroplasia.<\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t    <p><a class=\"button button-arrow\" href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/stay-connected\/\" target=\"_self\">Join now<\/a><\/p>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n\n<div id=\"acf-block-67bc87bdce11e\" class=\"block quote bg-primary quote-full block-zero-top block-zero-bottom\">\n    <div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"box\">\n\t\t\t\t<div class=\"quote-content\">\n\t\t\t\t    \t\t\t\t\t<div class=\"content-block\">\n\t\t\t\t\t\t<blockquote>\n\t\t\t\t\t\t    \t\t\t\t\t\t\t    <p>Her name is Sarah, not achondroplasia\u2026achondroplasia just happens to be her condition.<\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t    <cite>Jennifer, Mother of Sarah, 5 years old* <\/cite>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/blockquote>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-69d50fb67c1bd\" class=\"block cards cards-3-col bg-band bg-band-secondary block-zero-top block-zero-bottom\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"cards-title\">\n\t\t\t    \t\t\t\t\t\t\t<\/div>\n\t\t\t<div class=\"cards-wrapper\">\n\t\t\t    \n<div id=\"acf-block-69d50fb67c83c\" class=\"card card-fixed-button card-centered\" data-muted-autoplay=\"false\">\n    \t    \n\n                    <img decoding=\"async\" class=\"card-image\" src=\"https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2026\/04\/Baby.png?v=0.93\" alt=\"Baby lying down\" \/>        \n\t    <div class=\"card-content\">\n                            <h4>Navigating a diagnosis\n<\/h4>\n        \n                                                                                                            <p style=\"text-align: center\">The first 2 years of life are important for your child&#8217;s growth. Take the next steps toward finding specialized care with confidence.<\/p>\n                                                                                                                                                                                                                                                                        \n                                                                                        <\/div>\n                                <div class=\"card-actions\">\n                            \n                            <p><a class=\"button button-text button-arrow\" href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/diagnosis\/\" target=\"_self\">SEE WHAT TO EXPECT<\/a><\/p>\n                                                                                    <\/div>\n<\/div>\n\n<div id=\"acf-block-69d5105bac5ff\" class=\"card card-fixed-button card-centered\" data-muted-autoplay=\"false\">\n    \t    \n\n                    <img decoding=\"async\" class=\"card-image\" src=\"https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2026\/04\/Bones.png?v=0.93\" alt=\"\" \/>        \n\t    <div class=\"card-content\">\n                            <h4>Understanding achondroplasia\n<\/h4>\n        \n                                                                                                            <p>Inhibited bone growth can affect physical development and overall health. Dive deeper into the cause and impact of achondroplasia.<\/p>\n                                                                                                                                                                                                                                                                        \n                                                                                        <\/div>\n                                <div class=\"card-actions\">\n                            \n                            <p><a class=\"button button-text button-arrow\" href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/about-achondroplasia\/\" target=\"_self\">Learn more<\/a><\/p>\n                                                                                    <\/div>\n<\/div>\n\n<div id=\"acf-block-69d5105bac699\" class=\"card card-fixed-button card-centered\" data-muted-autoplay=\"false\">\n    \t    \n\n                    <img decoding=\"async\" class=\"card-image\" src=\"https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2026\/04\/Children-with-achondroplasia.png?v=0.93\" alt=\"Children with achondroplasia\" \/>        \n\t    <div class=\"card-content\">\n                            <h4>Learning from community\n<\/h4>\n        \n                                                                                                            <p>Meet members of your local achondroplasia community or hear from experienced healthcare professionals in person or virtually.<\/p>\n                                                                                                                                                                                                                                                                        \n                                                                                        <\/div>\n                                <div class=\"card-actions\">\n                            \n                            <p><a class=\"button button-text button-arrow\" href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/events\/\" target=\"_self\">Join an event<\/a><\/p>\n                                                                                    <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-67b7fa3bb05de\" class=\"block split-content equal-bias bg-band bg-band-primary block-zero-top block-zero-bottom\" data-muted-autoplay=\"false\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t                                                                <div class=\"content-block first-block\">\n                                                                                                <h3>HEARING REAL STORIES FROM REAL FAMILIES<\/h3>\n<p>Raegan has a larger-than-life personality and loves to laugh. Her mother, Raechel, is a planner who always has an eye on the big picture. See how their community helped them find belonging and understanding.<\/p>\n                                                                                                                                                                                                                                                                                                                                                                                                                                                                        <p><a class=\"button button-arrow\" href=\"https:\/\/player.vimeo.com\/video\/1065678412\" target=\"_self\">Watch this video<\/a><\/p>\n                                                                                                                        <\/div>\n                    \n                                            <div class=\"content-block second-block\">\n                                                                                                                                                                                                                                                <div class=\"video-poster\">\n\t\t\t                            <a class=\"modal-video permitted\" href=\"https:\/\/player.vimeo.com\/video\/1065678412\" style=\"background-image: url(https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2026\/04\/image-7-e1777385102182.png?v=0.93);\">Watch the video<\/a>\n\t\t                            <\/div> \n                                    \n                                                                                                                    \n                                                                                                                                                   \n                                    \n\t\t                                                                            <\/div>\n                                                \t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-67b7fa3bb05de\" class=\"block split-content equal-bias content-reverse bg-band bg-band-secondary block-zero-top block-zero-bottom\" data-muted-autoplay=\"false\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t                                                                <div class=\"content-block first-block\">\n                                                                                                <h3 class=\"h3\">CARING FOR YOURSELF<\/h3>\n<p>Self care is an essential part of providing your child with the best support possible. Learn how you can start taking simple steps to make your health a priority as well.<\/p>\n                                                                                                                                                                                                                                                                                                                                                                                                                                                                        <p><a class=\"button button-text button-arrow\" href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/self-care\/\" target=\"_self\">Explore tips<\/a><\/p>\n                                                                                                                        <\/div>\n                    \n                                            <div class=\"content-block second-block\">\n                                                                                                                                                                                                                                                                                    \n                                    \n                                                                                                                \n                                    \n                                    <figure>\n                                        <div class=\"image image-rounded\">\n                                                                                            <img decoding=\"async\" class=\"\" src=\"https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2026\/04\/image-2.png?v=0.93\" alt=\"\" \/>                                                                                    <\/div>\n                                                                            <\/figure>\n                                                                                    <\/div>\n                                                \t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-69d5180c5ed9b\" class=\"block boxed-content top-border\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"box\">\n\t\t\t\t                    <h2 class=\"h3\">Explore a treatment option\n<\/h2>\n                \t\t\t\t\n<div id=\"acf-block-69d5180c5ef99\" class=\"block-wysiwyg\">\n            <p>Discover a treatment option for infants and children with achondroplasia.<\/p>\n<p><a class=\"button button-arrow\" href=\"https:\/\/www.voxzogo.com\/en-us\/\" target=\"_blank\" rel=\"noopener\">Learn more<\/a><\/p>\n    <\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-67d29619837c8\" class=\"block call-to-action block-zero-top block-zero-bottom\">\n    <div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"box\" style=\"\">\n\t\t\t\t<div class=\"overlay\"><\/div>\n\t\t\t\t<div class=\"cta-content\">\n\t\t\t\t                            <div class=\"cta-image\">\n                            <img decoding=\"async\" class=\"\" src=\"https:\/\/achondroplasia.biomarin.com\/en-us\/wp-content\/uploads\/sites\/14\/2025\/02\/EMAIL_icon@2x-1.png?v=0.93\" alt=\"\" \/>                        <\/div>\n                    \t\t\t\t\t<div class=\"cta-content-main\">\n                        <div class=\"content-block\">\n\t\t\t\t\t        \t\t\t\t\t        \t\t\t\t\t\t        <h2 class=\"h3\">Join the inside story\n<\/h2>\n\t\t\t\t\t\t    \t\t\t\t\t\t    \t\t\t\t\t\t        <p>Gain access to information about achondroplasia, including educational resources and upcoming events in your area. All sent directly to your inbox.<\/p>\n\t\t\t\t\t\t    \t\t\t\t\t    <\/div>\n\t\t\t\t\t                                <div class=\"content-block\">\n                                <p><a class=\"button button-ghost button-arrow\" href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/stay-connected\/\" target=\"_self\">Stay connected<\/a><\/p>\n                            <\/div>\n\t\t\t\t\t                        <\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-67d408d2d96bb\" class=\"block wrapped-content block-tight-top\">\n    <div class=\"wrapper\">\n        <div class=\"inner-wrapper\">\n                \n<div id=\"acf-block-67d408d2d98c2\" class=\"block-wysiwyg\">\n            <p><small>*Names have been anonymized.<\/small><\/p>\n<p><strong>References:<\/strong><\/p>\n<ul>\n<li><small>Adedeji A, Witt S, Innig F, et al. Coping and quality of life of parents of children with achondroplasia-a narrative review. <em>Front Med (Lausanne)<\/em>. 2025;12:1500389.<\/small><\/li>\n<li><small>Constantinides C, Landis SH, Jarrett J, et al. Quality of life, physical functioning, and psychosocial function among patients with achondroplasia: a targeted literature review. <em>Disabil Rehabil<\/em>. 2022;44(21):6166-6178.<\/small><\/li>\n<li><small>Hoover-Fong J, Cheung MS, Fano V, et al. Lifetime impact of achondroplasia: current evidence and perspectives on the natural history. <em>Bone<\/em>. 2021;146:115872.<\/small><\/li>\n<li><small>Hoover-Fong JE, Schulze KJ, McGready J, et al. Age-appropriate body mass index in children with achondroplasia: interpretation in relation to indexes of height. <em>Am J Clin Nutr<\/em>. 2008;88(2):364-371.<\/small><\/li>\n<li><small>Hoover-Fong J, Scott CI, Jones MC; Committee on Genetics. Health supervision for people with achondroplasia. <em>Pediatrics<\/em>. 2020;145(6):e20201010.<\/small><\/li>\n<li><small>Horton WA, Hall JG, Hecht JT. Achondroplasia. <em>Lancet<\/em>. 2007;370(9582):162-172.<\/small><\/li>\n<li><small>Merker A, Neumeyer L, Hertel NT, et al. Growth in achondroplasia: development of height, weight, head circumference, and body mass index in a European cohort. <em>Am J Med Genet A<\/em>. 2018;176(8):1723-1734.<\/small><\/li>\n<li><small>Savarirayan R, Hoover-Fong J, Ozono K, et al. International consensus guidelines on the implementation and monitoring of vosoritide therapy in individuals with achondroplasia. <em>Nat Rev Endocrinol<\/em>. 2025;21(5):314-324.<\/small><\/li>\n<li><small>Savarirayan R, Ireland P, Irving M, et al. International Consensus Statement on the diagnosis, multidisciplinary management and lifelong care of individuals with achondroplasia. <em>Nat Rev Endocrinol<\/em>. 2022;18(3):173-189<\/small><\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n    <\/div>\n        <\/div>\n    <\/div>\n<\/div>\n\n<div id=\"acf-block-67c04b85e80b1\" class=\"block next-previous block-zero-top block-zero-bottom\">\n    <div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n            <div class=\"link link-prev\">\n                                    <p><a class=\"button button-text button-arrow button-arrow-left\" href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/events\/\" target=\"_self\">Events<\/a><\/p>\n                            <\/div>\n            <div class=\"link link-next\">\n                                    <p><a class=\"button button-text button-arrow\" href=\"https:\/\/achondroplasia.biomarin.com\/en-us\/community-support\/\" target=\"_self\">Community Support<\/a><\/p>\n                           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